Wednesday, January 12, 2011

Bone marrow biopsy...what??


So it is a funny testament to my personality...We found out the results last Thursday afternoon (much earlier than expected) of my PET scan that showed complete remission, and by Friday afternoon I was frustrated that I didn't have the complete plan as to what was next yet.

I have now been released from my regular oncologist to a specialist for the stem cell transplant process.  I've been in touch with them before now, I have been talking with the nurse who I adore already even though I haven't met her.  She has been aware of my current ICE treatments and said to let them know when we have good PET scan results...so I did.  And I am ready to go!!!!

I had to have  reality check when I didn't get all the answers as to what is next, right away.  Fortunately the nurse realizes my anxious personality and sent me what she had so far late Friday afternoon.  It wasn't the final plan, but it was everything she knew by then.  And there was nothing planned until this Thursday, and it was more testing, no treatment....I felt a bit disappointed by this.

On top of that, the buzz of the clean PET scan fizzled a bit when I read that I am scheduled for another bone marrow biopsy.  I don't know if you remember, but I can guarantee you that that was the worst possible thing I have experienced yet in my lifetime.  My mom is there to attest...she refuses to witness another one of those without some sort of sedation. Barbaric is the term we use...

For those of you who haven't been here to experience it, or haven't read about it in the news, Atlanta has been hit by a huge snow storm.  We got 5 inches Sunday night, and the city has been shut down ever since.  All my testing for the next phase is scheduled for tomorrow, and until today I didn't even know if it was going to be possible.  Fortunately then nurse called me today and said, yes, let's go!!  No time for delays.  All that was on my mind was, .... will you sedate me for the bone marrow biopsy???? And she said yes, no problem.  We take good care of you.  PHEW!!!!

So tomorrow I will go for an entire day of testing to prepare me for what is next.   I hope to know soon what the schedule is for the next couple of months.  I am a planner, and the not knowing is tough on me. But we are on the path!

So there we are for now.  I have had a great week.  Michael and I went up to the mountains last  weekend, and even though my stamina and strength aren't great I still managed to get to the top of the mountains (slowly...)  The snow hit on Sunday night and I had a nice time feeling cozy with my love.  We went for walks, enjoyed the crystal brightness of the snow and ice, made our snow family and cuddled savoring each moment for what it is, and bracing for what is next.

Here's to staying warm and feeling loved.  Sending love to you all!

3 comments:

  1. The snow family is too cute! Keeping you in my thoughts and prayers today. I'm glad the weather is letting up enough for you to get all the necessary testing done. *hugs & love*

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  2. Eve, sorry for the public comment - I couldn't find an email address to send this to you directly. You should ask your doc about the OnControl Bone Marrow System. It's new to the market, and research on the system compared to the traditional way to do BMBs shows 1) better specimen results 2) LESS PAIN. Patients I've talked to who've had both ways vastly prefer this option.

    vidacare.com/oncontrol
    http://www.youtube.com/watch?v=BP0f5CKuYoI

    I'm glad to send you more info if you want - lisaowens@regval.com

    (Disclosure: I'm a consultant for OnControl, trying to let patients know that this option is available.)

    Blessings and stay warm....

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  3. The snow family is soooooo cute! Now you need to tell the rest of the story, about how there is a time and a place for drugs. I loved spending the day with my precious jewel!

    ReplyDelete