She has a nice room here at Northside in the special wing where all the bone marrow transplant people stay since it has specially filtered air and cleanliness standards for people with low immunity. It was a rough evening for her with some upchucking and mouth sore pain, but Michael spent the night and she made it through okay. I'm here now and she's feeling better -- her fever dropped to 100.3 but she cannot eat or drink anything, even water, without pain. They just hooked her up to some pain med pump in hopes that she will at least be able to drink and maybe eat some soft food. She has an appetite, just can't endure the pain of eating!!! So she is watching cooking shows on tv to pass the time. I have been enjoying some of the hospital food they bring her -- feel a little guilty eating in front of her, but oh well!
Speaking of food, Evie and Michael had hired a chef to make some special organic, tasty food to help rebuild Evie's strength and to nourish the caregivers (Michael and me). This very talented chef spent Monday and Tuesday preparing all sorts of amazing dishes and storing them in containers in their refrigerator for us all to eat this week. The house was fragrant with delightful smells when we returned from the clinic yesterday. But -- you guessed it! -- Evie won't be eating any of that tasty food for awhile. I brought a salad and pot roast home for Andy to eat yesterday -- boy, was he happy!
No one knows for sure what the timeline is from here, but the best guess so far is that she will be here for maybe 3 days until her white cell counts start going up. If she is feeling better then, and if she doesn't have a fever, they'll let her out and we will resume the treks each morning to the clinic at 7 a.m. for a seven-hour stay involving blood tests and more fluids.
We count off the days. Next week she will feel much better; the week after even better, a month from today these mouth sores will be just a dream.
Oh Evie, I'm so sorry that you're having to go through this. You're such a trooper and rarely complain but I can read through your Mom's beautifully written words how much pain you're in. I think of you all the time, and will go to bed tonight daydreaming of soon-to-come days when we can hit Tallullah Gorge and chill in the summer air. You are an amazing person, as are Micheal and your mom and every other member of your family. Thinking of you tonight and praying for a speedy recovery...Love always, Crofton :)
ReplyDeletePlease, dear Lord, let this be the bottom and give Eve the strength to ascend back to health with no lymphoma and all her stem cells flourishing! Bless all those who are lending their strength to help you, all of you are in our thoughts and prayers. Om, shanti, shanti, shanti...
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